After 2 1/2 hours at Children's and 7 doctors later here is what we know....
He will need tubes in his ears in the immediate future (although we are going to get a 2nd opinion, for various reasons)
He will have a reconstructive surgery with his lip at the age of 4-5 before he enters kindergarten.
He will have a bone graft done to repair the rest of his jaw between the ages of 7-10 years old.
The geneticist said his cleft lip/palate is more than likely not genetic so the odds of him having a child with a cleft lip/palate is less than 5%.
The audiologist said he is within normal range for hearing although his eardrum is not resonating as well.
The ENT dr. said that he still has some fluid in the ear and that he has a very high build up of dried wax very deep in the ear. His suggestion was tubes b/c of the fact that Jake has been so very sick since we got him.
The speech therapist said to not worry about anything for about 6mos until his speech does come in better withthis being his 2nd language but wasn't all the concerned for him as he has been catching on and mimicking so well.
And that is all for that...we go back in a year... Friday we are hoping to get into the international clinic for immunization blood work and other lab work that needs to be done!
Sebastian Böhm
3 years ago
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